Logan is not needing nearly as much pain meds, but his body is having a hard time getting weaned off of them. It's making him have really painful cramps, so the doctors decided they want to put him on methadone. It makes it easier to wean him off the the PCA quicker and his body wont go crazy on him.
Logan still wont eat anything. He screams at me if I show him food. The nurse said he should start getting his appetite back once they lower his TPN. He is drinking a lot. It's really funny because the only thing he will drink is Sprite. We had to switch to diet Sprite because his blood sugar was shooting up. So now we have to get the diet Sprite and pour it into a regular empty Sprite can. He won't drink it any other way.
Logan's blood sugar did get way to high, the docs said it's because of the steroids and the FK506, an immunosuppressive drug. They put him on an insulin drip and now it's under control. Now that they know how much of the insulin he needs they are going to start putting it in his TPN. When he is done with the steroids and FK506 he won't need the insulin anymore.
The doctors said if we want to go home we have to make sure he needs to be off most of the IV meds. He is slowly going off of stuff! We are hopefully looking at three weeks until we are out of the hospital. Of course he will still have to go to clinics for infusions. But we would like to be back in TX by November.
Also, they have gone down on the steroids almost half of what he was getting before. They are going to go down even more on Monday. He still has major roid rage, big time mood swings. I am going to put a video up for an example, and this video isn't even close to bad. I set him off in the video because I made eye contact with him.
Poor Logan, happy times are on their way!
ReplyDeletePoor Logan, and poor Mommy and Daddy! Remember, this too shall pass!!! Love you, Granny
ReplyDeleteOh man, those mood swings have gotta be rough! I'm the roids are in half and that he's getting off the pain drip...
ReplyDelete