Friday, July 15, 2011

Summer fun!


I can’t believe how long it has taken me to update this. But life has been crazy, fool of appointments, traveling, and surprises along the way! Let me start with Logan. Logan is doing great. We had some scares here and there but nothing too major. For example, his asthma flares up every once in a while, which is always a little scary. And the biggest scare of all was when he fractured his skull. He was at the park and he fell off the bench and hit the back of his head on the concrete. Afterwards he was a little bit unsteady but nothing else. I was still worried and called Dr. Shaffer and she said unless he throws up there shouldn’t be too much to worry about. The next day he seemed a little more tired than usual and he acted like his head was sore, but nothing to really worry me too much. That night he woke up screaming and holding his head and then he started getting super lethargic and started throwing up. I was pretty sure he was having an adrenal attack, so I gave him a solu-cortif shot and took him to the E.R. They did a CT of his head and found a fracture. Billy and I were both surprised, but glad we knew what the problem was. I feel so bad sometimes; if he could just speak he could have told me right away that his head hurt!
Soon after that incident it was time for Logan’s yearly studies at Duke. I drove up to NC, and Logan was so good for the drive up! It was so nice to see all the familiar faces again! And we even visited 5200 and saw all the wonderful nurses! All of his test results came back normal. The only thing that was off was his thyroid. He has hyperthyroidism and now he is on meds for it. Logan’s endocrine doctor thinks it will just be temporary. We were not able to get a eval done, with Dr. Escolar this time around. I would have liked to see what level he is at now, but we will get that done another time. I think Logan has gained some skills. Dr. Paul said that we can start weaning Logan off of his FK! This is such great news! The FK is really the only thing that’s suppressing his immune system, once he is off of the Fk he can get off of five of his other meds. So this is a huge step! Tomorrow Logan will be one year post transplant, it’s so exciting! We are so lucky to have such a strong little boy, I don’t know many adults who can go through what he has and still have a smile on their face!
At the end of June we went to the Pacl family reunion in Colorado. We had so much fun. It is so nice to get together with the whole family, the Pacls are one of a kind and I am so happy to be part of this awesome family! Colorado is beautiful. I honestly didn’t want to leave. The mountains are something to see, and the air is so fresh! We were staying in Buena Vista, I can’t even describe how beautiful it is, and not even pictures will do it justice. We had a great time!
Aiden had to get surgery when we got home from Colorado. He had to get his adenoids removed and his sinuses widened. It was about a two hour surgery, he did fine. After the surgery his doctor said his adenoids were really bad and it was amazing he has not gotten a lot of ear infections. Aiden’s only had one ear infection in his life, but he always seems to have a sinus infection. Today, he is still recovering from his surgery, he is doing great and loves being waited on hand and foot.
Austin is staying healthy and bratty! He has a speech evaluation next week because sometimes people have a hard time understanding him. But he is still my trouble maker and full of energy.
The kids are really enjoying summer right now. They are swimming, going to the park, and they really love the new water park at the Williamson County Park! Tomorrow is Logan’s 1 year transplant anniversary! I am so thankful that he is healthy after all he has gone through. We are going to celebrate with a Wow Wow Wubbzy cookie cake!

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