Wednesday, January 19, 2011
Day two of Logan's six month studies.
Well today was another BUSY and LONG day! But it's all good news. First we started the day off going to clinic..gosh I miss Duke. Anyway, Logan got his six month labs done, they took a lot of blood. Everything came back normal, except his FK level. It was low, which means his body is most likely metabolizing it to fast so they just have to up the dose. And we will get his immunity studies back at the end of the week. Dr. Paul said today, that he is comfortable saying that Logan is in the clear for GVH, which is awesome news. Also, Dr Paul thinks that it is possible that some of the enzymes are passing the blood brain barrier because Logan has gained so much speech after transplant! That news was the greatest of all today, but I still don't want to get my hopes to terribly high. After clinic Logan had to get a Brain CT and sinus CT, oh boy let me tell you how much fun that was... Logan fought so hard. He had to stay still for about five minutes so we had to use straps to hold him down, of course that's nothing new, the child is strong! But he was ok, as soon as I started singing to him he calmed down. After the CT we went to get his hearing test. Turns out Logan has an ear infection in both ears, but his hearing test still came back completely normal. Dr. Paul also said that we do not have to go back for the nine month studies because Logan is doing so well. We don't have to come back until July. So far this trip has been full of good news, it makes me so happy! Tomorrow Logan has to get an EEG and a eye exam, so hopefully that will go well too!
By the way if you are noticing a ton of grammar mistakes, it's because I don't have my editor, Billy to look this over:) I am the Comma Queen!
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The news about the enzyme is FANTASTIC!!!! Absolutely spectacular!!
ReplyDeleteSo happy for all of you!