Alright, I know it has been a long time since I have posted anything. It has been a super busy month! Logan got discharged from the hospital on September 9th! His lungs cleared up and everything is under control. It was a wonderful day. I mentioned in a previous post that when kids get discharged the staff throws a confetti parade. It was so great, I was worried that Logan was going to freak out with everyone cheering and throwing confetti at him but he smiled the whole time. That had to be one of the happiest moments of my life! Now we are at the apartment and it's so nice! Logan is on eight oral meds and two IV meds. He has to have breathing treatments three times a day. He still needs creams for his skin. He also still has to get TPN and lipids at night. Billy and I have to prepare his TPN and lipid bag and hook him up at night. We also have to hook him up to his two IV meds. It is way easier then it sounds. In the morning when he is done with his TPN and Lipids, we have to draw labs and then I go to drop them off so they will be ready y the time he has to go in to clinic. We started out having to go to clinic every day but the docs decided to move it to Monday, Wednesday and Friday, because Logan is doing so well. All of his counts have been staying up and his blood pressure and his lung issues have been under control. Logan has been a different kid since he has been out of the hospital, he is always smiling and laughing.
He has so much energy I have to stop him from doing somersaults and climbing on everything. He has been talking so much, he has quite a few new words, and he is starting to sign. I love seeing him like this! When we started this process I thought it was going to be the most awful thing, but it turned out to be much easier then I thought. Don't get me wrong there were some hard times, it was so hard seeing Logan so sick. I still think that all of this was worth it. The nurses were wonderful, I will miss all of them. We were up there for so long they became family. I think it takes a special person to be a PBMT nurse. I don't think they will ever know the extent of my gratitude for them. Then there was the Family Support group, they were awesome too. They provided us with dinner all the time, they are the ones who pretty much provide all of the movies, games, anything you can think of to entertain the kidos. A lot of people volunteer a help out. And then there was Logan's Best Buddy, David. He was very nice and came every weekend. I feel a little bad because he never really got to know the real Logan, he only got to see grumpy Logan stuck in the hospital. And there are also the social workers, who are always there to be your advocate or just someone to talk to. Jennifer is ours. She is the one who is responsible for helping us to get Billy to stay here, and she is always around if we need to talk. She is great! I know that a lot of people will look back and see this as being the worst experience of their life. But when I look back I see so much more happiness then sorrow. It was an adventure for all of us, one that's not over. We have met so many wonderful people, and have learned so much. I can tell you this whole experience has made me a better person, but the most important thing is Logan's going to have a better life! I am also super excited because I am going to visit Aiden, and Austin for a week! I miss them so much. I am leaving on the 28th and coming back on the 6th. I can't wait to see them, to hug, and kiss them! 
Logan's Lipids, TPN and IV meds.
